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View Full Version : Duchenne Muscular Dystrophy: have you heard of it?



dolfin530
07-11-2009, 06:23 PM
Thought this was a good way to spread awareness about the disease. I have it and it sucks but I am managing it pretty well. Unfortunetely there is no cure. The lack of money and BS really slows up research.

First link is an article about it and the second is a video about it.



http://pennhealth.com/encyclopedia/em_DisplayArticle.aspx?ptid=1&gcid=000705

http://www.joost.com/02000df/t/Duchenne-The-Death-Gene#id=020006q

HansMojo
07-12-2009, 12:29 AM
Thought this was a good way to spread awareness about the disease. I have it and it sucks but I am managing it pretty well. Unfortunetely there is no cure and doctors and the FDA are idiots because they don't understand there needs to be a sense of urgency when it comes to finding a cure. First link is an article about it and the second is a video about it.



http://pennhealth.com/encyclopedia/em_DisplayArticle.aspx?ptid=1&gcid=000705

http://www.joost.com/02000df/t/Duchenne-The-Death-Gene#id=020006q
Sorry to hear that you have that man, that really does suck. My thoughts and prayers are with you.

I was encouraged to read that stem cell research on it shows promise and will be praying that they find a cure for you soon.

dolfin530
07-12-2009, 11:09 AM
Sorry to hear that you have that man, that really does suck. My thoughts and prayers are with you.

I was encouraged to read that stem cell research on it shows promise and will be praying that they find a cure for you soon.


Thanks man!

dolfin530
02-13-2010, 09:10 PM
It would be sweet if finheaven could some how help spread awareness about this disease, just an idea!

Ricky_Fan34
02-13-2010, 10:08 PM
Great idea man, and I feel for ya. Can't imagine having a disease like that, and I hope they somehow someway find a cure for it.